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I post a lot about my life with Cerebral Palsy on my personal IG page. This is one of the pictures that I posted about chronic pain. So after this picture was posted I received multiple messages asking me if I really was 1 of 2, because they never ‘heard’ me complain about chronic pain or I didn’t ‘look’ like I was hurting when they were around me.
After reading those messages I started to think back and various outings, locations I have been to with these people and I realized that in some of those instances I was counting down the minutes to when I could go home, take some pain medicine and lay down. You see we don’t always look like we’re in pain, in fact we not even tell you that we are hurting. I for one don’t want anyone showing me some pity because my joints hurts, or I’m having muscle spasms. Sometimes I say something, other times I don’t. If the pain is really bad, you won’t see me, I’ll just cancel plans and stay in bed.
While writing this blog post my hands are hurting and just touching the keys is painful, but this my life. I don’t complain about it much, I just deal with it. The pain is there everyday some does its stronger than others. My meds work wonders and I take them faithfully, different pain levels need different meds. I do what I can and move on.
So yes I am 1 of 2. Everyone with Cerebral Palsy doesn’t have chronic pain even if we have the same the diagnosis. CP treats each of us differently.
Patric Yuhans
August 27, 2023 at 4:09 amIt’s admirable how you handle your situation with such strength and resilience, dealing with the pain and managing it with medication. Your approach of not wanting pity but instead choosing to move forward is a testament to your courage. It’s true, conditions like Cerebral Palsy can manifest differently in each person, showcasing the uniqueness of each individual’s journey.
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Lisa Carden
September 17, 2019 at 10:43 amChronic pain is really a hard part of life and we don’t need any pity at that time. Don’t you think to ckeck it with a good chiropractor? The way you accepted it as a part of life is really appreciated. Thanks for sharing with us!!
John Gatesby
June 7, 2019 at 12:01 pmDealing with Cerebral Palsy coupled with chronic pain is really tough and hats off to you for having accepted it as part of your life and this has made it a little easier for you to live with it, not every body is able to do this. Kudos to you!
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DEBJANI SARKAR
May 6, 2019 at 9:00 amnice post.